And here is my little man puttin it on!

Here is boy2 testing. He's the little guy in front of the table.

Or a yellow belt, whatever. He's been taking Tae Kwan Do lessons for about 4 mths now. Last Saturday he tested for his yellow belt. We are sitting on pins and needles waiting to find out if he got it or not. He did awesome. It'd totally give him the belt.

After he tested, we went to city market in downtown KCMO. I LOVE that place. I could live there. We bought more produce than we know what to do with. We also went to Planters. Not the peanut place, but the spice place. Bought tons of spices. Then to the grocery store. Bought tons of groceries. Then home for not so tons of sleep.

It was a good day.

And it didn't hurt nearly as bad as I thought it would. The nurse who came to show me how to do it has MS herself and injects on Friday nights with the same meds I'm taking. That was kinda nice. She could really understand my fears about injection and the side effects. I practiced for about 10 mins on an orange. Then my husband practiced on the orange. Then I broke out into tears. Not really because I was scared but having to inject myself really drove home how sick I am. This shit is for real. This isn't something I think it wrong in my head and I'm blowing it up in my head to make it seem worse than it is. This is my life, for the rest of my life. For the next however many years, I'll have to inject myself with this medicine to help keep me out of a wheelchair, help keep me out of diapers, help so I can control my limbs. So I cried, for 5 mins. Then I stopped and shot myself. Now I'm down here on the internet telling people I know and don't know about how terrified I am. Then I'll log off and the kids (who are out of school today)and I will pop popcorn, shove in the Transformers movie and cuddle in blankets to watch it. I won't think about my MS anymore today. MS is a greedy disease. Right now, it deserves 10 mins a week of my time and it's on minute 9. It's done. It deserves no more thought this week. Until next week MS..........I got a life to live and kids to love. Suck that.

It has come to our attention from several emergency rooms
that many EMS narratives have taken a decidedly creative
direction lately. Effective immediately, all members are to
refrain from using slang and abbreviations to describe patients,
such as the following.

Cardiac patients should not be referred to with MUH (messed
up heart), PBS (pretty bad shape), PCL (pre-code looking) or
HIBGIA (had it before, got it again).

Stroke patients are NOT "Charlie Carrots." Nor are rescuers to
use CCFCCP (Coo Coo for Cocoa Puffs) to describe their
mental state.

Trauma patients are not CATS (cut all to sh*t), FDGB (fall
down, go boom), TBC (total body crunch) or "hamburger
helper." Similarly, descriptions of a car crash do not have to
include phrases like "negative vehicle to vehicle interface" or
"terminal deceleration syndrome."

HAZMAT teams are highly trained professionals, not "glow
worms."

Persons with altered mental states as a result of drug use are
not considered "pharmaceutically gifted."

Gunshot wounds to the head are not "trans-occipital implants."

The homeless are not "urban outdoorsmen", nor is
endotracheal intubation referred to as a "PVC Challenge".

And finally, do not refer to recently deceased persons as being
"paws up," ART (assuming room temperature), CC (Cancel
Christmas), CTD (circling the drain), or NLPR (no long playing
records).

I know you will all join me in respecting the cultural diversity of
our patients to include their medical orientations in creating
proper, narratives and log entries.

http://msmagnet.org/MS_Awareness_Items.html

WE HAVE A NEW AWARENESS COLOR FOR MS.......ORANGE!!!

Go to the above site, buy a MS awareness item. Tell 'em Lori sent ya. No, not really, they don't know who I am. Don't buy anything, just go look. I'll be sporting some of those fashions next time you see me.

After calling in sick to work yesterday, I was back in the swing of things today! I am a peer trainer at work. Meaning I train my peers (what? didn't need the definition?). Today I spent 8 hrs with 2 people I just met. I spent all day spewing forth knowledge that I had forgotten I had. I was in great form. It's good to know that MS and the treatment for it, while it's a pain in the ass, won't keep me away from doing the things I love. Bring it on, I can take it. I can take it in spades and give it right back. How's that MS beotches?

Don't you hate it when you lay something down, only to come back days later and it's not there? I HATE that!

My meds came bright and early yesterday morning. The delivery box was marked with bright pink stickers all over to let the nice UPS man know that it was pershible. So he promptly left it on my doorstep without knocking. It wasn't located until 10:30 when my son's therapist showed up at the house for our visit. Luckily the cold pack inside was still frozen and my syringes full of life saving fluid was still nice and icy. Right now, in my fridge, sit 4 needles. Yep, I will no longer open the damn thing. It is the best diet to be on. I am no longer hungry for anything cold.

I woke up yesterday morning sick as a dog. After the therapist left, I slept all day long. From noon until my husband got home at 6pm. Went back to bed at 9pm and just now got up. Since I start my shot next Friday, this now means that every Friday for the next 6 mths or so, I will spend in bed sick, like I have the flu sick. Wonderful. I was hoping my last Friday before my shot I could take the kids for a walk, go downtown on the bus and do some shopping. Didn't work out that way.

Baby #6 is about to turn 3. We have another month and a half, but to me, that's *almost 3. This represents a lifetime of having babies for me. If you count the 2 miscarriages I have had, I've been pregnant for 66 months. That's 5.5 years. OMG that's a long time to do anything! I have changed a diaper every single day for the last 14 yrs 10 mths. Most of those years include having 2 in diapers at once. I have spent aprox 2 yrs of my life potty training someone. I have spent 12 yrs fixing someone a bottle. And this November 18th, I will have spent the past 13 yrs married to the same man. I feel as though I have spent a lifetime taking care of other people. Other people I chose to have, I realize that. That's a long time to dedicate to someone other than yourself. I will be 52 yrs old when my youngest is 18. I hope I have enough time after that to tend to myself. I have things to do dammit!

"Reply to this post, and I will list three things I love about you. Maybe more than three. Then repost to your own journal and spread the love."